The Arc of Monroe County
The Arc of Monroe County has been providing a variety of programs and services for over 3,500 individuals with intellectual and/or developmental disabilities and their families in the Rochester community for over 50 years. The Arc of Monroe County has 40 locations in Monroe County that assist individuals with intellectual and/or other developmental disabilities that include Autism, Down Syndrome, Cerebral Palsy, Asperger Syndrome, and Pervasive Developmental Disorders among others.
Some of our services include: Special Sitters and Transition Coaching.
The LifePrep@Naz program is an interagency campus based program for 18-21 year old students and young adults with intellectual disabilities. The overall goal of the program is for individuals to continue their education while working towards competitive employment. LifePrep@Naz will be implemented this fall of 2011 with a total of 16 students. Nazareth College, in partnership with Victor Central School District and The Arc of Monroe, plans to establish a program with two levels of completion certificates; 3 year Program to be endorsed by Nazareth College and the sending school district, and a 4 year Program to be endorsed by Nazareth College, the sending school, and The Arc of Monroe. The curriculum is created to be inclusive of students. 50% of their time will be with same aged peers without disabilities. The program will include NYS CDOS’ standard as a foundation, experiential vocational opportunities, and individual designed Person Centered Planning. LifePrep@Naz students will also be supported by peer mentors who are Nazareth College Students. Mentors will provide academic support to students and promote the inclusiveness of LifePrep students in the campus community.
For additional information, please contact
My Time Providers is a home-based respite program providing extra help for families caring for a loved one with an intellectual or other developmental disability. Sitters can provide services in the home or can assist the individual needing care with opportunities for recreation in the community.
Special Sitters provides comprehensive training for the sitters, enabling family members to spend time away from the home, safe in the knowledge that their loved one is cared for by a trained sitter. In addition, Special Sitters are available for other family members in need of care or assistance. Each sitter is thoroughly trained in communications skills, special needs awareness, creative activities, First Aid, and CPR.
A Transition Coach is a FREE service that assists individuals with intellectual disabilities and their families in Monroe County. The Transition Coach will facilitate an individual’s life plan with short and long term goals.
How can a Transition Coach help? The Transition Coach will assist the individual with the following:
OPWDD Eligibility: OPWDD eligibility allows an individual access services through the Finger Lakes DDSO. Service Coordination, Day Services and Residential placement are examples of services available with OPWDD eligibility. To be eligible, an individual must have been diagnosed with an intellectual disability prior to age 22.
Medicaid Enrollment: If you would like to apply for Medicaid services, our Transition Coach will assist you with completing a Medicaid application.
Autism Center at Ontario ARC
3071 County Complex Dr., Canandaigua, NY 14424
The Autism Center at Ontario ARC is a centralized, regional clearinghouse for information sharing, referral and services.
Customized training for direct care professionals, families,law enforcement groups, attorneys and schools.
Clinical services with experienced psychology and social work staff, who are highly-trained in autism spectrum disorders.
Residential services and community-based services to help people with autism live as independently as possible while providing support to families.
Day programs tailored to meet the specific needs of people with autism. Recreation to help children, teens, and adults feel comfortable in different social settings. Service Coordination provided by professionals specifically trained to work with individuals with autism spectrum disorders. Resource library with a comprehensive offering of books, professional journals, newsletters, videos, DVDs and assessment tools.
Autism Advisory Board consisting of regional experts, law enforcement representatives, educators, family members and other stakeholders who will help to identify needs and plan for the future.
Autism Council of Rochester
We are a volunteer-run agency of professionals and parents of ASD (Autism Spectrum Disorder) children who have come together to aid others affected by ASD. Advocating on behalf of children living with ASD, we believe they deserve to live a fulfilling life, ultimately achieving their dreams and aspirations.
The Autism Council of Rochester seeks to educate the community at large, bringing a greater awareness of children, teens and adults who live with ASD. In addition to offering support services to individuals with ASD, The Autism Council teaches autism awareness to educators, community groups and the medical community.We provide a variety of programs and services that help with the development of social and physical skills. Programs are designed to further prepare each participate for life.
Autism Research at URMC
Attention Parents/Caregivers of Children with Autism Spectrum Disorders:
Does your child also have symptoms of Attention-Deficit Hyperactivity Disorder?
Dr's. Tristram Smith, Susan Hyman, and Jennifer Zarcone are conducting a study to find out whether two treatments, alone or together, can help with symptoms of inattention and hyperactivity in children with Autism Spectrum Disorders. One treatment is a medication called atomoxetine (brand name is Strattera). This medication is intended to reduce impulsivity, inattention, and hyperactivity. The other treatment is called Parent Management Training (PMT). This training is intended to help parents learn strategies to manage their child’s challenging behaviors. The study is supported by the National Institutes of Health and is being done in collaboration with investigators at Ohio State University and the University of Pittsburgh. Reimbursement is provided for study participation in addition to study medication and the medical and behavioral care during the study. We are actively recruiting participants. If you are interested in learning more about this study please contact our research coordinator, Carol Stamm, at 585-275-0953 or Carol_Stamm@urmc.rochester.edu for more information. Or visit www.golisano.urmc.edu.
Some children with Autism Spectrum Disorders have challenging behaviors such as:
- Refusing to follow directions
- Having frequent tantrums
- Hitting themselves or others
Dr. Tristram Smith is conducting a study to test two interventions for parents of children with Autism Spectrum Disorders who also have challenging behaviors. One intervention is called Parent Management Training (PMT). PMT is intended to help parents learn how to manage their child’s challenging behaviors. The other intervention is called the Parent Education Program (PEP). PEP is intended to give parents information about autism and services that are available in the community for their child. The study is supported by the National Institutes of Health and is being done in collaboration with investigators at Yale University, Ohio State University, University of Pittsburgh, and Indiana University.
We are actively recruiting participants. If you are interested in learning more about this study, please contact our research coordinator for more information!
Who is eligible to participate?
- Have a diagnosis of Autism or a related disorder (Autism, Asperger syndrome, Pervasive Developmental Disorder-NOS, Autism Spectrum Disorder)
- Also have challenging behaviors such as refusing to follow directions, having tantrums, or becoming aggressive
- Are between the ages of 3 and 6 years old.
Center for Autism and Related Disorders, Inc (C.A.R.D.)
6 N. Main Street, Suite 110, Fairport, NY 14450
Phone: 585-377-6590 Fax: 585-377-6605
The Center for Autism and Related Disorders, Inc (C.A.R.D.) was founded in 1990 by Dr. Doreen Granpeesheh. CARD is one of the largest organizations in the world providing treatment to children with Autism, PDD and Asperger's Syndrome. Following the principles of Applied Behavior Analysis (ABA), we develop individualized treatment plans for your child. Behavior Analysis is the science of learning and motivation and consists of principles based on over 100 years of research. At CARD, we strive to help children by developing unique and individualized behavioral programs based on each child's particular strengths and weaknesses. Our goal is to teach all of our children the functional skills necessary to replace previously learned maladaptive behaviors, enabling them to live independent and productive lives. We are proud to provide autism services around the globe.
CARD Rochester offers a variety of services to clients ages 1-30. These services include Speech Language Pathology, Special Education Services, Feeding Clinic, Challenging Behavior Clinic, School Consultation, Early Intervention and Preschool Home-Based Programs.
CARD is an approved by New York State Department of Health and currently contracts with Monroe and Westchester County to provide Special Education Services.
For more information please call Denise Rhine, MS Ed. BCBA, Managing Supervisor.
Please find our contact information below:
Clinical Associates of the Finger Lakes
Clinical Associates of the Finger Lakes is dedicated to providing high quality services to children and their families. We offer a wide variety of therapeutic, educational support services to infants, toddlers and preschoolers with developmental needs including:
•Special Education and Behavioral Support
•Social Work Services
•Assistive Technology Devices and Services
Our exceptional staff of highly qualified individuals knows that the continued development and social growth of each child hinges on the support he or she receives from family, community and caring professionals. Therefore, we provide services to children in their home, childcare or community setting. We work closely with parents and caregivers to give them the skills they can use to help their child reach his or her fullest potential.
Clinical Associates of the Finger Lakes offers a range of services for children diagnosed with an Autism Spectrum Disorder through a total team approach. Members of these teams may include special educators, speech-language pathologists, occupational therapists, physical therapists, a psychologist, and a Program Manager who oversees the entire team. Each service plan is dependent upon a given child's unique needs.
Community Consultation Program
Golisano Children’s Hospital
727 Elmwood Avenue, Rochester, NY 14642
Phone: (585) 275-6605 Fax: (585) 275-3366
The Community Consultation Program provides evidence-based technical assistance and training to school teams and others who are working with children with disabilities and/or behavioral challenges. We have expertise in the following areas:
- Applied Behavior Analysis (ABA)
- Educational Consultations
- Inclusion Consultations
- Functional Behavioral Assessment (FBA)
We also provide continuing education and staff development programs for professionals working with children with developmental disabilities.
Our goals are to increase the capacity of school or agency personnel to support their own students. We assist in the development and implementation of programs aimed at decreasing challenging behavior and increasing positive social and academic skills. We also ensure that children with challenging learning needs receive appropriate instruction and services to maximize independence.
Consultation may include building capacity with child-specific teams or classroom teams at the school district or agency level. Consultation can also be provided to ensure that children with disabilities are educated in the most inclusive environment possible. Our consultant team includes behavior analysts, clinical and school psychologists, and educators who have expertise in using evidence-based interventions for students with Autism spectrum disorder, challenging behavior, emotional and behavior disorders.
For more information about Happiness House Autism Services, please contact
Jill Mundy at (315) 789-6828 or Email
5415 County Road 30, Canandaigua, N.Y. 14424
731 Pre-Emption Rd, Geneva, NY 14456
Located in the Finger Lakes area, Happiness House offers an array of services to individuals of all ages exhibiting characteristics of or diagnosed with Autism.
The Diagnostic and Treatment Clinic provides individuals with comprehensive diagnosis and treatment options while minimizing needless travel. The evaluation team includes licensed Psychologists/and or Physicians with experience with evaluating children who may be on the Autism Spectrum.
Preschool (Center) Based Services
Full and half Day integrated preschool programs designed using a behavioral approach. Specialized techniques such as Discrete Trial Teaching, Social Skill Development and PECS (Picture Exchange Communication) are used to meet the unique needs of children on the Autism Spectrum at both the Geneva and Canandaigua locations.
Community Based Services
Clinical Therapy services including Speech, Occupational and Physical therapy provided center or community based.
Service Coordination services to assist individuals and their families in locating and accessing supports and services they need to reach their fullest potential.
Residential Habilitation provides a one on one service to individuals in their home and/or community to assist them reaching their fullest potential through the development of individualized services plans with the individual and their family.
Preschool to School-Age Transition services are provided by the Autism Coordinator ensuring that the transition into primary school is as seamless as possible by working closely with the family, child and school district.
Respite is a care service (for a child or adult) provided to families who have an individual with Autism residing in their home.
For more information please contact Lisa Diehl
1870 South Winton Rd., Rochester, NY 14618
Liberty POST is a division of Liberty Resources, a Syracuse-based human services agency which is dedicated to providing quality programs to serve the community. Liberty POST-Rochester employs a number of highly qualified professionals providing Early Intervention and Preschool therapy services in the surrounding Monroe County area. In addition to our general clinical services, Physical therapy, Occupational Therapy, Speech Therapy, Special Teacher Instruction, we offer an autism program that differs from many area providers of therapy for autism and developmental disorders.
We believe that every child is unique and must be treated and nurtured differently in order to grow. Thus, we utilize the DIR®/Floortime™ (Developmental, Individual Difference, Relationship-based) Approach- a family-friendly, child-centered method of treatment. Under the direction and mentorship of an ICDL (Interdisciplinary Council on Developmental and Learning Disorders) certified clinician and trained Autism Specialists/School Psychologists, we are able to collaborate best so that we may focus on your child's emotional development and ability to relate to others. With this base of the DIR®/Floortime™ model, we are then able to focus on all developmental areas, including social-emotional functioning, communication, thinking and learning, motor skills, body awareness and attention.
A seamless team approach which includes parents and caregivers as active participants, provides an individualized and comfortable intervention model for each child. With professionals in all areas of child development, Liberty POST has the expertise to help children - and families- discover and reach their fullest potential."
Monroe Boards of Cooperative Educational Services (BOCES)
Monroe 1 - Orleans BOCES:
41 O'Connor Road, Fairport, New York 14450
Monroe 2 - Orleans BOCES:
3599 Big Ridge Road, Spencerport, New York 14559
A partner in education
Monroe #1 BOCES is one of 37 Boards of Cooperative Educational Services (BOCES) operating throughout New York State. BOCES 1 is located in the Town of Perinton, a suburb southeast of Rochester, New York. BOCES 1 is a cooperative extension of the ten Monroe County suburban school districts on the east side of Rochester and also serves 48 school districts from 12 neighboring counties in western New York.
The strength of BOCES lies in how cost-savings programs are cooperatively provided to support students who need help meeting the learning standards, students preparing for college and careers, and adults in the community who are improving their skills.
Monroe #1 BOCES was initiated by its component school districts and chartered on January 5, 1956 to carry out a program of shared educational services and instruction. From those early years of providing a few shared staff, BOCES has grown to offer more than 80 programs and services for more than 46,000 students in our ten component school districts.
Contributing to excellence in schools
Monroe #1 BOCES is a major contributor to the recognized excellence of Monroe County schools with a proven ability to adapt to rapidly to the changing needs of students. For more information on Monroe County schools, go to http://www.actforeducation.org/.
PRO Social Thinking
349 West Commercial Street, Suite 2490, East Rochester, NY 14445
585- 678- 1839
What Makes us Unique
We believe that success in life is determined through our relationships at work, at school, in our friendships and within our families. Our goal at ProSocial Thinking is to move individuals beyond the rote memorization of social skills, to using a cognitive decision-making process; thinking about the ways one's words and actions influence others. We teach meaningful strategies in a therapeutic environment that can be integrated into daily routines. We teach the importance of understanding hidden social rules and expected behaviors in a variety of contexts.
Who We Serve
- People who exhibit social thinking challenges often:
- Have difficulty interpreting body language
- Struggle in conversation
- Miss social cues communicated through eye contact
- Over-focus on details and miss the big picture
- Lack self-control or emotional regulation
- Inattentive and Impulsive
- Exhibit rigidity in thinking
- Are inhibited by social anxiety
- Avoid working and socializing in groups
- Need assistance learning to understand others perspective
Rochester Hearing and Speach Center
Elmwood: 1000 Elmwood Avenue, Rochester, NY 14620
Phone: 585-271-0680 | TTY: 585-442-2985
Greece: 3199 Ridge Road West, Rochester, NY 14626
Phone: 585-723-2140 | TTY: 585-723-3856
Webster: 1170 Ridge Road, Webster, NY 14580
Phone: 585-286-9373 | TTY: 585-442-2985
RHSC is a non-profit organization that has been dedicated to providing caring and high-quality services to children, adults, and families for over 90 years. RHSC offers a wide-range of services for children ages birth to five, school-age, and adults that are accessible through the Early Intervention or Preschool Special Education systems, private pay, or billed through insurance. Services include:
- speech-language pathology
- special education
- occupational therapy
- physical therapy
- educational evaluations
- various developmental groups (e.g., speech groups, occupational therapy groups, parent-child groups, and Early Intervention Enhanced Developmental Groups)
For children ages birth to five and demonstrating characteristics of or diagnosed with autism, RHSC recognizes that no two children with autism are the same. RHSC offers the option between two intervention models in order to provide flexibility in meeting a family's individual needs. Both programs are designed to build a child's functional and developmentally-appropriate skills and work with children and families in their least restrictive, natural environment. Our multidisciplinary teams of providers are intensively trained and value a collaborative approach to autism treatment. The Monroe County-approved, evidence-supported Applied Behavior Analysis (ABA) Program provides individualized and comprehensive treatment through discrete trail instruction, natural environment teaching, and functional behavior assessment/behavior intervention. The SCERTS® Program focuses on individualized, family-centered, and developmentally appropriate approaches to building social competence across meaningful and purposeful activities that naturally occur throughout a child's day.
Stepping Stones Learning Center (SSLC)
2111 Hudson Ave, Rochester, NY 14617
Phone: (585) 467-4567 Fax: (585) 467-6973
Stepping Stones Learning Center (SSLC) Is a nonprofit family centered program for children with and without special needs.
SSLC offers a variety of inclusionary classroom programs including:
Tender Loving Caregiver(TLC) for children ages 15 months to 3 years old
Transition Integrated Classroom (EI) for children ages 20 months to 4 years old
1/2 Day Behavior Classroom (EI) for children ages 20 months to 4 years old
Preschool Integrated Classroom (3-5)
Pre-Kindergarten Classroom (4-5 and school age)
RCSD Universal Pre-Kindergarten (UPK) Program. Must be a City Resident and 4 years of age to participate
Full and Half Day Special Classes for children ages 3-5 identified to be on the autism spectrum
Related Services Department (EI and 3-5)
Related services such as speech, special education teacher services, occupational therapy, music therapy, physical therapy, social work services, assistive technology, psychological services and parent training by the above mentioned disciplines are provided throughout Monroe, Ontario, Genesee and Wayne Counties for children ages birth to 5. All approved related services are available independently or in combination with one another. Services may take place at SSLC’s designated clinic spaces, classrooms, childcare, nursery school, in the child’s home or an appropriate neutral site agreed upon by the parent and provider. Session frequency and duration are determined by the child’s IFSP or IEP. Collaboration between therapists, parents and other agencies involved is an integral part of the program and should be considered as an approved service whenever multiple providers are present on a child’s team. This could take the form of a meeting set on a predetermined basis.
For referral of services, contact the Main Office at (585) 467-4567
Specifically designed Autism programming available for children ages birth to 5. Contact Mary Richardson at firstname.lastname@example.org or
Christina Werts at email@example.com
The Applied Behavioral Analysis (ABA) program is an example of one of the methods utilized to achieve the objectives. It is a combination of research and practical experience in child development, behavior modification, developmentally appropriate practices and meeting the overall needs of special children in combination with the principles of the “Lovaas” approach. It is imperative, in order for the ABA program to run smoothly and effectively for children; a team effort and ample communication are first and foremost on the agenda of each child’s curriculum. For information concerning this program or IFSP/IEP development, please contact Mary Richardson the Coordinator of Autism Services at (585) 467-4567 or firstname.lastname@example.org or Christina Werts at (585) 467-4567 or email@example.com
The Social Communication, Emotional Regulation and Transactional Support (SCERTS) program at SSLC will be starting in the summer of 2011. The Relationship-based Autism Program (RAP) will be transitioning to the more empirically based SCERTS model. The goal of this model is to provide therapy that is individualized to children on the autism spectrum and his/her family, as well as to encourage social communication and provide appropriate supports in order to help the child gain and maintain regulation so learning can occur. For information concerning programs or IFSP/IEP development, contact Mary Richardson the Coordinator of Autism Services at (585) 467-4567 or firstname.lastname@example.org or Christina Werts at (585) 467-4567.
Medicaid Service Coordination
Ages 3-21 with approval through OPWDD. Please contact Melissa DeBadts, Medicaid Service Coordinator, at (585) 467-4567 or email@example.com.
Family Education and Training thru the OPWDD Waiver Programs Behavior Consultation
For children between the ages of 3-21 in need of services through the Family Support Services of OPWDD.
- Please contact Megan Smith at firstname.lastname@example.org,
- Melissa Gambino at email@example.com
- Rob Curran at firstname.lastname@example.org. All may also be reached at (585) 467-4567.
Intensive Behavior Services
For children ages 3 – 21 through the OPWDD Waiver Program.
Please contact Megan Smith at (585) 467-4567 or email@example.com.
Autism Support Social Skills
For children ages 3 – 21 through Family Support Services of OPWDD. Please contact Megan Smith at firstname.lastname@example.org, Melissa eggert at email@example.com, or Rob Curran at firstname.lastname@example.org. All may also be reached at (585) 467-4567.
Respite Camp For children between the ages of 3-8 who are approved for Family support services and wish to attend on school breaks and holidays. Please contact Christina Werts at (585) 467-4567 or email@example.com.
Monroe County Early Intervention (EI) Program
Early Intervention (EI) is a voluntary developmental evaluation and services program offered by New York State and administered locally by Child and Family Health Services of the Monroe County Department of Health. The County EIP is subject to NYS regulations (see State for more information). EI serves children from birth through 2 years of age and their families where there is a high risk of delay, a suspected delay in development, or a confirmed diagnosis of developmental disability. Evaluations are conducted to determine eligibility. A variety of therapeutic and support services are offered to eligible infants and toddlers with disabilities and their families. If a child is found not eligible, parents can request developmental monitoring.
Rochester Regional Center for Autism Spectrum Disorder
Rochester Regional Center for Autism Spectrum Disorder (RRCASD),
Strong Center for Developmental Disabilities, University of Rochester Medical Center
601 Elmwood Avenue, Box 671, Rochester, NY 14642
Phone: (855) 508-8485 Email: firstname.lastname@example.org
The Rochester Regional Center for Autism Spectrum Disorder (RRCASD) is 1 of 6 regional centers for autism spectrum disorder (ASD) in New York State. It is located at the University of Rochester in the Division of Neurodevelopmental and Behavioral Pediatrics, Strong Center for Developmental Disabilities.
Mission: to contribute to the development of region-wide resources to better meet the needs of individuals with autism spectrum disorder (ASD). This is accomplished through our community education, training, and technical assistance activities.
Counties Served: Broome, Cayuga, Chemung, Cortland, Livingston, Monroe, Onondaga, Ontario, Oswego, Schuyler, Seneca, Steuben, Tioga, Tompkins, Wayne, Wyoming, and Yates.
The RRCASD provides:
• Information and Referral
• Free Webinars on autism spectrum disorder (ASD) and related topics
• Free DVD's online for self-study
• Free Information Sheets developed to provide a quick summary of an autism spectrum disorder (ASD) topic
• Free Semi-Annual Newsletter that provides information about autism spectrum disorder (ASD) activities, programs, and research happenings in our region
• Free Educational Presentations to community groups and agencies on autism spectrum disorder (ASD) and related topics
• Short-term intensive training & parent programs on one or more specific autism spectrum disorder (ASD) topics
Autism Learning Partners
Autism Learning Partners is an in home ABA agency that provides services to individuals with autism of all ages funded through private health insurance. We work on daily living skills, communication, social skills, learning readiness skills, challenging behaviors, and so much more! We work with the family as a whole and provide parent education and 1:1 behavioral health services. In addition, we now offer social skills classes in both BUFFALO and ROCHESTER regions. We do service North of Buffalo and the Southern Tier as well. Contact us today at
- Heritage Christian Services