Parent & Sibling Support

  • MATT - Managing Autism Together Today

    Managing Autism Together Today (MATT):

    Our monthly events:

    Family Fun Night at Bounce-It-Out: Second Wednesday every month 5:30pm-730pm

    Dad's Night Out: Third Thursday every month @7pm

    Mom's Night Out: Fourth Wednesday every month @6pm

    Our annual events:

    MATT-o-ween Halloween Bowling Party at AMF Webster Lanes:

    5th annual  Autism Spectrum Connection Fair

    MATTS 5K Run for Autism

    MATT Family Day with the Rochester Rhinos

    MATTS 5th Annual Prize Raffle

    For more information and to RSVP for these events please view our Events Page

  • Autism Council of Rochester

    Autism Council of Rochester

    1025 Commons Way, Rochester, NY 14623
    Receptionist: (585) 487-3500
    Direct: (585) 413-1681

    We are a volunteer-run agency of professionals and parents of ASD (Autism Spectrum Disorder) children who have come together to aid others affected by ASD. Advocating on behalf of children living with ASD, we believe they deserve to live a fulfilling life, ultimately achieving their dreams and aspirations.

    The Autism Council of Rochester seeks to educate the community at large, bringing a greater awareness of children, teens and adults who live with ASD. In addition to offering support services to individuals with ASD, The Autism Council teaches autism awareness to educators, community groups and the medical community.

    We provide a variety of programs and services that help with the development of social and physical skills. Programs are designed to further prepare each participate for life.
  • CDS Monarch

    CDS Monarch

    860 Hard Rd.,Webster, NY, 14580 585-341-4600
    Parents and family members of people with developmental disabilities have the opportunity to come together for support, resources, and information sharing. Parent groups offer networking and support, and education through scheduled presenters that focus on a variety of topics.

    Parent Support Groups meet two Saturdays per month from 9-11am at the Wolf Life Transitions Center, 860 Hard Road, Webster, NY

    For information or to register for the Parent Support Group, please contact Evonne Pomerantz, Program Coordinator, at (585) 347-1031 or

    Family Education and Training provides training classes to families who have a loved one under the age of 18 with disabilities. Each session helps families: Enhance decision-making capacity of the family unit, provide orientation about the nature and impact of developmental disabilities upon your loved one and you, and inform families about CDS services.
    Family Education Training Sessions are offered one to two times per month at CDS' Wolf Life Transitions Center.

    CDS Sib Shops:
    A unique program developed by CDS, “Sib Shops” addresses the importance of peer support and education for siblings of people living with developmental disabilities. Siblings have the opportunity to learn and share through fun activities in a relaxed environment. This group meets for ten sessions per year at CDS' Wolf Life Transitions Center in Webster. The group meets two Saturdays per month from 10:00 am - noon. Sibshops Group will be held for Siblings age 6-13 years old

    Autism Skill Building:
    This program is designed to help individuals with Autism increase their skill development. Participants work on increasing their socialization skills, handling their own emotions, and recognizing stress while developing techniques to cope with stress. The program offers great opportunities for peer interaction & support and is open to children ages 6-16. The group meets Monday- Friday for two hours after school.
    For more information, contact Sarah Eksten at 347-1075

  • Parent to Parent of NYS

    Parent to Parent of NYS

    Parent to Parent of NYS
    c/o Finger Lakes DDSO Office
    620 Westfall Road Rochester NY 14620

    Jacqui Liebman  Email (585) 424-7211

    Counties Served: Livingston, Monroe, Ontario, Yates, and Wayne


    Parent to Parent of NYS is a place where families of individuals with special needs and the professionals who serve them can meet and share information.

    Support – We offer parents/caregivers the opportunity to connect one-to-one with a parent/caregiver of an individual with the same or similar disability or special health care need – someone who has “been there.”

    Information & Referral – We help families locate the information and services they need

    Trainings – Workshop sessions are available on Understanding Medicaid Service Coordination, Record Keeping and Using a Health Care Notebook, and various other topics.

    The Finger Lakes Office of Parent to Parent of New York State

  • Stepping Stones Learning Center (SSLC)

    Stepping Stones Learning Center (SSLC)

    2111 Hudson Ave, Rochester, NY 14617
    Phone: (585) 467-4567 Fax: (585) 467-6973
    Stepping Stones Learning Center (SSLC) Is a nonprofit family centered program for children with and without special needs.

    Classroom Programs:

    SSLC offers a variety of inclusionary classroom programs including:
    Tender Loving Caregiver(TLC) for children ages 15 months to 3 years old
    Transition Integrated Classroom (EI) for children ages 20 months to 4 years old
    1/2 Day Behavior Classroom (EI) for children ages 20 months to 4 years old
    Preschool Integrated Classroom (3-5)
    Pre-Kindergarten Classroom (4-5 and school age)
    RCSD Universal Pre-Kindergarten (UPK) Program. Must be a City Resident and 4 years of age to participate
    Full and Half Day Special Classes for children ages 3-5 identified to be on the autism spectrum

    Related Services Department (EI and 3-5)
    Related services such as speech, special education teacher services, occupational therapy, music therapy, physical therapy, social work services, assistive technology, psychological services and parent training by the above mentioned disciplines are provided throughout Monroe, Ontario, Genesee and Wayne Counties for children ages birth to 5. All approved related services are available independently or in combination with one another. Services may take place at SSLC’s designated clinic spaces, classrooms, childcare, nursery school, in the child’s home or an appropriate neutral site agreed upon by the parent and provider. Session frequency and duration are determined by the child’s IFSP or IEP. Collaboration between therapists, parents and other agencies involved is an integral part of the program and should be considered as an approved service whenever multiple providers are present on a child’s team. This could take the form of a meeting set on a predetermined basis.
    For referral of services, contact the Main Office at (585) 467-4567

    Specifically designed Autism programming available for children ages birth to 5. Contact Mary Richardson at or
    Christina Werts at

    The Applied Behavioral Analysis (ABA) program is an example of one of the methods utilized to achieve the objectives. It is a combination of research and practical experience in child development, behavior modification, developmentally appropriate practices and meeting the overall needs of special children in combination with the principles of the “Lovaas” approach. It is imperative, in order for the ABA program to run smoothly and effectively for children; a team effort and ample communication are first and foremost on the agenda of each child’s curriculum. For information concerning this program or IFSP/IEP development, please contact Mary Richardson the Coordinator of Autism Services at (585) 467-4567 or or Christina Werts at (585) 467-4567 or

    The Social Communication, Emotional Regulation and Transactional Support (SCERTS) program at SSLC will be starting in the summer of 2011. The Relationship-based Autism Program (RAP) will be transitioning to the more empirically based SCERTS model. The goal of this model is to provide therapy that is individualized to children on the autism spectrum and his/her family, as well as to encourage social communication and provide appropriate supports in order to help the child gain and maintain regulation so learning can occur. For information concerning programs or IFSP/IEP development, contact Mary Richardson the Coordinator of Autism Services at (585) 467-4567 or or Christina Werts at (585) 467-4567.

    Medicaid Service Coordination
    Ages 3-21 with approval through OPWDD. Please contact Melissa DeBadts, Medicaid Service Coordinator, at (585) 467-4567 or

    Family Education and Training thru the OPWDD Waiver Programs Behavior Consultation
    For children between the ages of 3-21 in need of services through the Family Support Services of OPWDD.

    • Please contact Megan Smith at,
    • Melissa Gambino at
    • Rob Curran at All may also be reached at (585) 467-4567.

    Intensive Behavior Services
    For children ages 3 – 21 through the OPWDD Waiver Program.

    Please contact Megan Smith at (585) 467-4567 or

    Autism Support Social Skills

    For children ages 3 – 21 through Family Support Services of OPWDD. Please contact Megan Smith at, Melissa eggert at, or Rob Curran at All may also be reached at (585) 467-4567.

    Respite Camp For children between the ages of 3-8 who are approved for Family support services and wish to attend on school breaks and holidays. Please contact Christina Werts at (585) 467-4567 or

  • Autism Up (Formerly Upstate New York Families for Effective Autism Treatment, UNYFEAT)

    Autism Up (Formerly Upstate New York Families for Effective Autism Treatment, UNYFEAT)

    AutismUp,  855 Publishers Parkway, Webster, NY 14450


    Our mission is to support individuals with Autism Spectrum Disorder, and their families, by expanding and enhancing opportunities to improve quality of life.

    The efforts of AutismUp have reached thousands in the Upstate New York area to raise awareness of the Autism Epidemic and to strengthen the abilities and increase the success of individuals with autism spectrum disorder, ASD. We provide support and education to individuals with ASD, their families, and professional service providers.

    Our Commitment:
    To provide support to those who care for individuals with ASD
    To identify areas of need for individuals and families affected by ASD
    To create and implement social skills education programs for individuals with ASD
    To provide community education and awareness regarding ASD
    To advocate for individuals with ASD through policy change
    To collaborate with community partners to promote the inclusion of individuals with ASD

    Our current programming includes:
    Spectrum Sibs Sibshops:
    Spectrum Sibs is a Sibshop specifically for kids ages 8-12 who have a sibling with Autism Spectrum Disorder. Sibshops acknowledge that being the brother or sister of a person with special needs is for some a good thing, others a not-so-good thing, and for many, somewhere in-between. They reflect a belief that brothers and sisters have much to offer one another — if they are given a chance. Sibshops are a spirited mix of new games (designed to be unique, off-beat, and appealing to a wide ability range), new friends, and discussion activities.

    * For most current information on programming visit the website at

    Summer Social Skills Education Program at the YMCA
    I Can Ride, (formerly the Lose the Training Wheels Program)
    Exploring Sensations Sensory Integration Program
    AutismUp Connections Support Groups
    Monthly Speaker Series
    Conferences and Workshops
    Monthly Family Gatherings
    Special Interest Groups include:
    Lego Buddies,  Girl Power, & Science Club